Blair’s Wish is a small non-profit organisation that assists Central Coast families with children diagnosed with Cerebral Palsy and similar conditions. We operate an Equipment Loan Pool, provide support to our families and aim to increase a greater awareness of Cerebral Palsy in our community.
In March 2011, out of desperation to help her youngest son, Julia Sawer started a facebook page called ‘Blair’s Wish’. Raising a child severely disabled with Cerebral Palsy, and providing him with the equipment and therapy needed to give him the quality of life he deserved, is beyond the average family’s financial means. Most pieces of equipment cost in the thousands of dollars and Blair had a lifetime of equipment and therapy needs. Applying for funding was possible, for equipment deemed necessary, however the process at best took months, sometimes years and was never guaranteed.
When Julia Sawer was told that her 18 month old little boy Blair had Cerebral Palsy and Epilepsy, she was devastated. For the first two years of Blair’s life she grieved for what should have been and waited for someone to take control…to tell her what to do. Raising Blair was like being a first time Mum all over again.
The family were overwhelmed with messages of support from families like themselves with special needs children and the greater community. The response that the ‘Blair’s Wish’ facebook received could not have been anticipated, that as a result an anonymous individual would offer to purchase a standing frame for their son.
As a result of such kind heartedness, the vision of operating an Equipment Loan Pool, for children with Cerebral Palsy, living on the NSW Central Coast was born. By June 2011, Blair’s Wish was a registered as a not-for-profit organisation or charity with DGR status, run by a small group of dedicated volunteers.
Julia Sawer founder of Blair’s Wish, volunteers her time as President assisted by a small group of dedicated volunteers, many of which themselves have a child with CP or special needs. Julia is mother to Blair, his big sister Emily and brother Brayden and together with husband Chris live on the NSW Central Coast of Australia.
Julia studied for her Bachelor of Nursing at the University of Technology Sydney and has been a Registered Nurse since 1995. She has worked in variety of specialties areas and particular loved working with babies & children. Prior to Blair’s premature birth, it had been Julia’s intention to soon return to study. She had always dreamed of one day becoming a midwife and had an interest in working in Neonatal Intensive Care with premature babies.
In 2012, for her work with Blair’s Wish, Julia was nominated as Central Coast NSW Volunteer of the Year.
In her spare time Julia spends hours researching the latest therapy ideas and equipment available for children with special needs. Julia personally oversees the Blair’s Wish Facebook page, which she updates daily so as to keep in touch with Blair’s Wish supporters and in particular to support children with special needs and their families. She also hopes that by doing so she will be able to build a better community awareness of Cerebral Palsy, it’s affect on children, adults and their families in living with it. Julia likes to call Blair’s Wish... ‘Her kind of therapy’!
Friday 26th October 2012- Blair’s Wish joins forces with Breakaway to host a ‘DisabiliTEA’ morning tea in support of the National Disability Insurance Scheme (NDIS). Join us from 10am at Breakaway, 80 Highview Street San Remo, for a cuppa & some cake in support of this cause so close to the hearts of parents in our community with a disabled child like Blair :o)
Sunday 4th November 2012- BLAIR’S 4TH BIRTHDAY! The family will celebrate this special day having a BBQ at home with friends. Of course there will be loads of pressies and a BIG cake. We all know just how much Blair LOVES cake! :o)
Monday 5th November- Friday 9th November 2012- Blair’s Wish Mufti Days- Central Coast Primary Schools (Public & Private) are invite to take part in this special event, aimed at creating a greater public awareness of Cerebral Palsy and similar conditions, in OUR community. Each school invited has been sent an Info Pack that includes ‘Cerebral Palsy Facts for Parents & Teachers!’ and ‘Cerebral Palsy Facts Just for Kids!’ plus activity sheets and fun ideas for games to help our kids become better aware. To register please email Julia at firstname.lastname@example.org :o)
Saturday 18th May 2013- Blair’s Wish RockBiZ Music Trivia Night 2013- Keep the date free! Following its resounding success and as result of the huge amount of positive feedback we received requesting it be an annual event…. It’s on again. Next year will be even bigger & better and yes…’Framed’ will be hosting the music trivia again due to public demand! Watch THIS space :o)